was given on 01.03.2010 in Berlin, Eva Luise Köhler Research Award for rare diseases at the Ulmer doctor Karin Jurkat-Rott and Heidelberger radiologists Marc-André Weber. At the ceremonial presentation of the award was Princess Letizia, the wife of the English Crown Prince Felipe which is also involved in your English home for rare diseases than expected guest of honor. Eva Luise Köhler, wife of the President presented the award at the 3rd European day of action for people with rare diseases. The award recognizes a new approach to treatment for a rare form of muscle wasting and is endowed with 50 000 €. From the hypokalemic periodic paralysis (HypoPP) is an average of 100 000 people affected.
any suffering is considered rare if 10 000 people less than 5 suffer from them. Often it takes for a medical odyssey many years, until there is a diagnosis. Thus, including the Marfan syndrome to be considered as rare diseases.
More information here Eva Luise Köhler Research Award for rare diseases
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